Charlotte's Helix Project
People are talking about the Helix:
  • Charlotte's Helix
  • Helix Blog
  • A word from Charlotte
  • Fund the Helix
  • Mailing List
  • Sock-It to Eating Disorders, EDAW 2016
  • 100,000 Genomes Project
  • 2016 round-up; a word from our partners at Kings College London
Picture

Let's make this happen!

Did you know that the risk of developing an eating disorder is largely genetic?

Scientists have known for some time that there is a genetic link, but now with newer technology, a lowering of the costs associated with genomic research, and cooperation around the world, we finally have the opportunity to "crack the code" and understand what makes some people more predisposed to an eating disorder. This opens the door to new insights and effective treatments.


What do we need? 25,000 DNA samples around the world. Who is going to make that happen? We are.

In the UK, we're hoping to gather at least 1,000 samples. You may be one of them. You may pay for some part of them. Wherever you are, we need YOUR help.

This is site is here to help you enroll in the study, fund-raise for the study, and share information on eating disorders, genetics, and exciting research progress.

What is Charlotte's Helix?

Picture
Charlotte's Helix was founded in the UK to honour the eating disorder advocacy work of Charlotte Bevan.  It is part of a global effort to collect DNA samples from over 25,000 individuals who have had anorexia at any time in their life, otherwise known as #AN25K.

The goal of Charlotte’s Helix is to add at least 1,000 UK DNA samples to #AN25K
(Read more here)


Picture

… calling …multiple…family…
100,000 genomes/…project

As part of its 100,000 Genomes Project, Genomics England has put out a call for participants.  They are looking for families with more than one family member affected for a very detailed project and we are supporting our partners KCL in this research.  Click here for more details and for how to register.
News just in …
Picture
Tanti Auguri…
Picture
Getting the show on the road!


Thank You!

…to ALL who have registered with us to be included in the "UK slice" of this international project.  

Thank you too to all those who have written to tell us their stories - we love to hear them and are often touched by the endurance, generosity, and hope of those who have reason to engage with us in this endeavour, and who are as excited as we are about its prospects. 

We can't do this without all of you! If anyone would like to share more widely and have us interview you for our blog or our FaceBook page, please let us know - it would be our privilege to let others know why this is
important this is to you.


Meet Charlotte Bevan

Biography
Charlotte's Blog: Chattering and Chuntering
C&M Video Series
Facebook
Notes from friends

Picture

Keep up with news on the project

Picture
Read
Charlotte's Helix news 
Join mailing list
Keep up on Facebook and Twitter

Fun ways to help Helix

Attend a fundraising tea or organise one yourself! Read Charlotte's book, Throwing Starfish. Sponsor or Suggest your own fun way to support Charlotte's Helix.

Read a description of being in the study by a participant

A blogger in the UK describes how, and why, she became a participant in Charlotte's Helix and AN25K. 

Charlotte's Helix during Prime Minister's Questions

In memoriam

Picture

Donate to 
Helix

Eating Disorders 
101

Add your DNA

Contact
the Helix

Charlotte Bevan, fierce advocate and activist, died at home January 13, 2014. Her friends and family mourn her loss and commit to carrying on her legacy.
  • Charlotte's Obituary announcement in The Times
  • Visit a discussion about Charlotte's passing on F.E.A.S.T. forum
  • See Charlotte's Facebook page for tributes
  • Read Charlotte's blog 
  • A word from Charlotte on the Charlotte's Helix project

Campaign progress

So far, Charlotte's Helix supporters have generously donated enough funds to collect 400 DNA samples in the UK! Keep the donations coming: our goal is 1,000-4,000. Every $ £ ¥ € is welcome and gets us closer to our goal: let's make history together.

Birthday wishes

Picture
Friends and supporters around the world donated their birthdays 
to Charlotte. See video birthday messages

Who is involved?

Charlotte's Helix is a collaboration 
by individuals and organizations 
who believe in Charlotte's dream 
of bringing AN25K to the UK. Join us!

see all supporters and
Charlotte's Helix Trustees

Join us:
info@charlotteshelix.net
Google+
Charlotte's Helix is a Charitable Incorporated Organisation
Registered number 1158227

Contact the Charlotte's Helix team:

info@charlotteshelix.net

Special thanks to 
Emily Bevan and Liana Mensh for the Helix design
Dr. Cynthia Bulik and her UNC team for the AN25K challenge
Beat for start-up funds administration
F.E.A.S.T. for the initial pledges and US donation administration
Registered Address: 11 High Garth | Esher | KT10 9DN | England